searching for a diagnosis: chasing the cure

Searching For a Diagnosis: Chasing the Cure

Do you ever watch those medical dramas on television and think, "Why can't my doctor be like that?"'House', 'The Good Doctor', 'Holby City' - the doctors see their patients and somehow figure everything out in no time at all. Even the afternoon drama, 'Doctors', set in a UK GP practice, can do it. They have …

Continue reading Searching For a Diagnosis: Chasing the Cure

How to get help in a trigeminal neuralgia emergency. Face pain

How to get Help in a Trigeminal Neuralgia Emergency

Despite taking medication correctly, trigeminal neuralgia can sometimes flare to unbearable levels. Things that normally help, like heat pads and cool packs, might not work. Sufferers use coping techniques like breathing, relaxation and distraction, but the pain still soars. They haven't been able to eat, drink or sleep for days. They struggle to cope. They …

Continue reading How to get Help in a Trigeminal Neuralgia Emergency

Pain can steal a sense of purpose. Cactus plants

Pain Can Steal A Sense Of Purpose

Everyone who lives with chronic pain or illness knows how much it takes away. I could write a long list. Their health condition can just sneak into their lives like a thief and steal so much away from them. One thing it can often take is a sense of purpose. I am sure that I …

Continue reading Pain Can Steal A Sense Of Purpose

ME/CFS Awareness Myalgic Encephalomyelitis, Chronic Fatigue Syndrome

Supporting ME/CFS Sufferers

I have met a lot of new friends since joining the Chronic Illness Bloggers community. Despite our pain or illness, we blog and we try to support each other. As well as writing being therapeutic for us, many of us blog to try to help other people with the same condition and also to try …

Continue reading Supporting ME/CFS Sufferers

Supporting People on Rare Disease Day

It can take a lot of courage to discuss health issues with friends and family, but sometimes people put their own health in the public spotlight to help others. Sharing Matters When someone has a rare disease, there is often very little information and support, therefore, what these people do really matters so much to …

Continue reading Supporting People on Rare Disease Day

Why We Need to Support Rare Disease Day

Rare Disease Day (28th of February) was first set up in 2008, with awareness events taking place in just eighteen countries. Last year, 90 countries took part.There are well over 6000 rare diseases in existence. Some are difficult to diagnose and most are difficult to treat or, in some cases, untreatable. Without awareness, there is …

Continue reading Why We Need to Support Rare Disease Day